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LeDeR Programme Leaflet For Families FINAL

The Learning Disabilities Mortality Review (LeDeR) Programme was established to improve healthcare for people with learning disabilities based on lessons learned from previous investigations into premature deaths. The LeDeR Programme reviews deaths of people with learning disabilities aged 4-74 in England by conducting initial and in-depth reviews involving health and social services. It aims to identify common issues and share best practices to improve future care through consulting families and collecting national mortality data. The LeDeR Programme is managed by the University of Bristol and commissioned by the Healthcare Quality Improvement Partnership on behalf of NHS England.

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50 views4 pages

LeDeR Programme Leaflet For Families FINAL

The Learning Disabilities Mortality Review (LeDeR) Programme was established to improve healthcare for people with learning disabilities based on lessons learned from previous investigations into premature deaths. The LeDeR Programme reviews deaths of people with learning disabilities aged 4-74 in England by conducting initial and in-depth reviews involving health and social services. It aims to identify common issues and share best practices to improve future care through consulting families and collecting national mortality data. The LeDeR Programme is managed by the University of Bristol and commissioned by the Healthcare Quality Improvement Partnership on behalf of NHS England.

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InclusionNorth
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© © All Rights Reserved
We take content rights seriously. If you suspect this is your content, claim it here.
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Learning Disabilities Mortality

Review (LeDeR)
Programme
(2015-2018)

Improving the standard and quality of care for


people with learning disabilities

The Learning Disabilities Mortality Review (LeDeR) Programme is commissioned by the


Healthcare Quality Improvement Partnership (HQIP), on behalf of NHS England.

Who are we?


The Learning Disabilities Mortality Review (LeDeR)
Programme is based at the University of Bristol and
managed by Dr Pauline Heslop.
Many of us were involved with the Confidential Inquiry
into premature deaths of people with learning
disabilities (CIPOLD)1.
The Programme is commissioned by the Healthcare
Quality Improvement Partnership (HQIP) on behalf of
NHS England.
Why is the LeDeR programme necessary?
CIPOLD reported that some people with learning
disabilities were dying sooner than they should. Some
of the reasons for this were related to the standard of
health and social care that they received.
One of the key recommendations of CIPOLD was for
us to look in more detail into the deaths of people with
learning disabilities. In this way, we would be able to
identify common issues or problems that might have
led to these deaths. Once these issues are identified,
improvements to health or social care could be made.
We also want to look at what helps some people to
live longer, healthier lives than other people and to
share this learning.

CIPOLD was a Confidential Inquiry into the deaths of people with learning
disabilities.

What does the LeDeR Programme do?


The LeDeR Programme supports local areas in
England to review the deaths of people with learning
disabilities aged 4-74.
A confidential telephone number and website will
enable families and other key people to notify the
LeDeR team of the death of someone with learning
disabilities.
An initial review of the death will then take place. If
necessary a more in-depth review will be carried out
involving people from health, social services and other
agencies.
We know it is important to hear your views
We would like to talk to family, friends and other key
people about the life and circumstances leading up to
the death of their relative or friend.
We hope by looking at the deaths of people with
learning disabilities and finding out from families and
others what, if anything, could have been done
differently, that this will help improve the health and
social care for people with learning disabilities in the
future.
We will also do a number of associated projects to
help us find out how many people with learning
disabilities die each year and why.

When is the LeDeR programme coming to my


area?
We will be collecting information about the deaths
of people with learning disabilities and speaking
with families, friends and other key people starting
in January 2016.

For further information about the LeDeR


programme
If you would like further information about the
LeDeR Programme, please contact:
Pauline Heslop
Programme Manager
LeDeR Programme
University of Bristol Norah Fry Research Centre
8 Priory Road
Bristol BS8 1TZ
Tel: 0117 3310686
Email: LeDeR-Team@bristol.ac.uk
Website: www.bristol.ac.uk/sps/LeDeR

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